I can remember the first time I experienced a tetany attack. It was the second day after my operation in 2001, post operatively during my recovery after total thyroidectomy surgery. I had no idea what was going on! I hadn't been warned this sort of thing could happen to me, I had been enjoying relaxing at the private hospital enjoying a wine with dinner. However on the day my life would change phenomenally, the morning started the same as any other. I had gone to the toilet around 10am, when all of a sudden a rushing sensation (you know the one!) started in both of my legs as I was sitting there. My feet then started arching under until only my big toes were left touching the floor. The muscle pain was excruciating as my hamstrings and calves stretched way out of their comfort zones! I hit the buzzer for the nurse! Her response "oh that's just your calcium, we've been wondering if that would happen to you"!! The look of disbelief on my face must have been evident to her, 'my calcium" I exclaimed. "I've never had a problem with calcium or bones in my life"! And with that the journey into the land of hypoparathyroidism began...
Hypopara Australia is a not for profit charity ran exclusively by volunteers, who themselves are living with hypoparathyroidism. Our volunteers live all around Australia. We have long recognised the need to provide an information service to patients living in Australia with this rare endocrine condition. We welcome your questions and contributions via our facebook page!